Overview
Well-managed data can support social impact organizations (SIOs) as they conduct lifesaving health research, reduce environmental threats, and produce societal value for individuals and communities. But these benefits are often overshadowed by harms, as current practices in data collection, storage, sharing, and use have led to high-profile misuses of personal data, data breaches, and sharing scandals. This report provides a practical framework and shares case studies to demonstrate how citizens can participate in shaping and improving ways data is collected and used.
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